If you have questions about BOTOX^® neurotoxin, your doctor is the best person to turn to. You may also find the following Web sites useful. The organizations that sponsor them can be a great source of information and support.

Organizations

Dystonia Medical Research Foundation (DMRF)
Phone: (312) 755-0198
Web site: www.dystonia-foundation.org

The DMRF is a nonprofit, voluntary organization that:

• Promotes a better understanding of dystonia
• Funds research and develops support groups
• Distributes educational materials and informational videotapes about dystonia
• Sponsors support groups for patients and their families. The DMRF has more than 100 local groups and 100 area contacts

Worldwide Education and Awareness for Movement Disorders (WE MOVE)
Phone: (212) 875-8312
Web site: www.wemove.org

WE MOVE, a not-for-profit organization, is a central source that:

• Offers up-to-date information on movement disorders
• Provides disease-specific information for patients and healthcare professionals
• Maintains a listing of national and international patient advocacy groups and foundations
• Sponsors Web chats with experts on movement disorders

The National Spasmodic Torticollis Association (NSTA)
Phone: (714) 378-7837
Toll-Free: (800) HURTFUL (487-8385)
Web site: www.torticollis.org

The NSTA is a national nonprofit organization that:

• Educates the public about spasmodic torticollis (ST)
• Provides support for ST patients and their families
• Advocates for the rights of those people with ST

ST/DYSTONIA, Inc.
Phone: (262) 560-9534
Toll free: (888) 445-4588
Web site: www.spasmodictorticollis.org

ST/Dystonia, Inc. is an international, nonprofit organization that:

• Seeks to help people with dystonia live better with the condition
• Offers educational tools such as a 24-page quarterly news magazine, a yearly symposium, and an informative Web site

The Brain Matters
Web site: www.thebrainmatters.org

The Brain Matters is a resource provided by the American Academy of Neurology Foundation. This site:

• Offers information prepared by neurologists about disorders of the brain and nervous system
• Features a section on dystonia, including information about diagnosis and treatment and a story from a dystonia patient
• Promotes research into the treatment of neurologic diseases
• Gives links to other helpful resources for patients and caregivers

Benign Essential Blepharospasm Research Foundation, Inc. (BEBRF)
Phone: (409) 832-0788
Web site: www.blepharospasm.org

This national voluntary health organization:

• Increases awareness of dystonia and its symptoms
• Promotes research about blepharospasm (eyelid spasms) and related disorders
• Offers regional, state, and local support groups for patients and their families

National Organization for Rare Disorders (NORD)
Phone: (203) 744-0100
Toll free: (800) 999-NORD (6673)
Web site: www.rarediseases.org

NORD is a unique group of voluntary health organizations and individuals that:

• Helps people with rare diseases and the organizations that serve them
• Offers helpful resources such as publications, a Web site, a networking service, and medication assistance programs
• Promotes programs of education, advocacy, research, and service

Health Web sites

These health sites cover many topics. Search for information about your condition and treatments.

Healthology
Web site: www.healthology.com

Mayo Clinic
Web site: www.mayoclinic.com

WebMD
Web site: www.webmd.com

Yahoo! Health
Web site: health.yahoo.com